Tuesday 3 September 2013

Silver Linings


This time last year I wrote -

 “My own life feels momentarily on hold while of course everyone else around me carries on as normal. For a few weeks I can’t carry on as normal and I wonder if the same “normal” comes back or if it is a “new normal”. All seems a bit weird and can’t believe I will be in hospital Wednesday afternoon. Lots of text messages, voice messages and cards today, thank you to everyone for thinking of us.Bag packed and I guess I am ready. The four weeks since diagnosis has raced by. As my friend Kim says, one day at a time for a while and best of all try to have one special moment in each day no matter how small.”

I continued with the “one day at a time” for quite a while and I have made sure to enjoy special, magic moments in most of my days.

 My cancer diagnosis has been an education.

My knowledge about breast cancer has grown vastly, not previously aware there were so many different types of breast cancer, no idea how I would look after a mastectomy, no understanding of why some people had radiotherapy and chemo while others didn’t. I have learnt how Tamoxifen works on the body to block further cancer cells, I have discovered the effects of anaemia. I have learnt about genetics and gene mutations. I have discovered, sadly, that the NHS is not what it should be.

Relationships in all walks of life have been tested, some have grown stronger, some have diminished and some have stayed the same. Within each of those groups, each change has been for the better. Those relationships worth the effort have grown and developed into richer, deeper friendships, the ones that were using up too much energy, going nowhere have closed and the ones that have stayed the same were the ones that were stable, solid and perfect just the way were. Noticeably my children, who have never treated me any differently, who still don’t like to empty the dishwasher, who still leave wet towels and clothes on the floor, who still ask “what’s for tea”! To them I was always Mum and nothing changed. They have always told me they love me and have always told me I am an amazing mum, and they still say the same. With so many things up in the air at the time, that “normality” was a huge comfort to me.

It’s incredible to look back over the last twelve months and see how far we have come. From a very dark place of unknown, immediately followed by Paul’s redundancy, we did indeed Dance In the Rain for some months and came out further on having found some silver linings along the way, which has been quite amazing. The redundancy paid for a holiday of a life time in South Africa, a new job for Paul, with shorter hours and a whole lot less stress, no need financially to let out the basement as an extra income, reducing my work load in the house and giving us chance to enjoy the whole house while we remain here in the hope that next spring someone may come along and want to buy her!

Of course it’s not all a bed of roses. Some days I get weepy, the anniversaries of diagnosis and surgery (this week last year) have been surprisingly emotional. I try not to think back to “before” to the time when I had two breasts and hadn’t had cancer. The battle with the NHS is draining, forever chasing appointments and follow ups. Eleven weeks since I was seen by gynaecology and still no follow up as promised. Two phone calls later and I finally received my annual mammogram appointment for tomorrow, some two and half months late as I had been “missed”. It does not fill me with confidence and does not help with the “moving on” process.

I need to find something to do with my time having had twelve months “off”!  Although I am good at filling my time, I am some days very lonely. Despite over seven years in Aberdeen I have made very few friends. My previous support work was always one to one, so very little contact with other people, time spent doing the house involved only trades people and with girls getting on the school bus, no opportunity to meet other mums. I’ve tried evening class and the gym etc which are always good to get you out but rarely provided long lasting friendships.

I’ve recently joined “Meetup.com” local groups set up for people to get out, do something and meet like-minded people. I hope to go to my first meeting with the next few weeks! I’ve also put my name forward to volunteer at a local playgroup. I hope some new doors will open as I am ready to move forward and further enrich my life!

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