Monday 6th August 2012. I was diagnosed with invasive lobular breast cancer. This is my story.
Friday, 17 January 2014
Monday, 6 January 2014
A New Year 2014
Very best wishes to everyone for the coming
year. It’s difficult to say “Happy New Year” to those friends facing tough times
when it will be far from a happy year for them, but none the less, best wishes
are sent to those who need them most and I very much hope that in between the
rough tough bits are fun and happy times to be enjoyed.
On Christmas day I found out that an
acquaintance of days past had a mastectomy in November for grade three invasive
breast cancer, another friend had BRCA genetic testing results back recently to
find she carries the faulty gene and an old school friend is cherishing every
day that she has as she lives with stage four breast cancer. It is all around
us and some of us are the lucky ones. For that I am very grateful.
The art project has taken off and is in full
swing to my amazement! I have 12 talented artists who are starting to create
some great images and work. I have sat for two life drawing sessions and had
three photo shoots. The life drawing was quite an experience! Naked in a small
village hall in Aberdeenshire on a winters morning, in front of 10 artists,
nine ladies, one man. I had moral support of my friend Dee who I met through
the CLAN cancer centre. Sat on white sheets and cushions, fan heaters blowing
over my skin and the room in soft focus without my glasses on, it was quite a
meditative experience sitting so very still listening to the scratching of
pencil and pastel on paper. Dee had declined to sit naked but having watched me
she then declared “If she can do it, so can I”. Major boost for body image and
self esteem after her double mastectomy, which is what the project is about.
2014 will see the results of my genetic
testing, the wait for those is still some months away. At the end of January I
begin my online study with The University of Bath learning about genetics in
cancer. This is just a six week module but one which I hope will help me
understand how and why some people develop cancers and what goes wrong within
the body. After my diagnosis I looked for something to blame for the cancer and
largely blamed myself for having lived quite a stressful life for a number of years.
The genetics department put my mind at rest when I clearly had led a healthy
life style, with regular fitness, meat free for years, given birth at the right
age, breast fed for six months on both occasions, not obese, non-smoker etc.
With a family history through my father’s side, of breast and prostate cancers,
the chances of me or my daughters developing breast cancer is “moderate risk”.
The genetic testing will confirm if that remains the same going forward
(negative BRCA mutation) or if it increases to high risk (positive BRCA
mutation). A high risk outcome will mean that choices have to be made for both
me and my daughters and I hope that some further understanding of genetics
through the online learning would help if we were to face that road.
I am generally feeling fitter and well these
days, although the tiredness can still be an issue at times. I suffered two
bouts of fatigue in December, quite a bad one, unfortunately over Hogmanay
which saw me taking to my bed just after 11pm despite a desperate attempt to
stay awake! These bouts usually only last two days and tend to come about 5
days after my period, which have become irregular between 3 – 6 weeks. It is
much more than tiredness, it is a feeling of having to drag yourself about to
do anything, heavy limbs, like the tin man, a feeling of muscles not
responding, clumsy and aching, fuzzy head. The only solution is to rest. I
thought some gentle exercise would help boost my energy levels and I took
myself off for a swim and a sauna during the last bout and I sat in the sauna
almost in tears wondering how I was going to get dressed and drive home. I
arranged to have my bloods checked just before Christmas to sure my iron levels
were still ok after the anaemia. I was told by the receptionist that the Doctor
was happy, no indication as to levels! Around 25% of women on Tamoxifen suffer
fatigue so I consider this to be a normal side effect of the drug and one that
I have to manage myself going forward.
It’s now 16 months since my surgery in 2012, and with the changing of the year it seems quite a big step forward that I no longer “had cancer last year”. I enter the New Year with mixed feelings. 2013 was such a good year for us all after the trials of 2012. We celebrated an 18th, 50th and 60th birthdays and a daughter passing her driving test. We had a fabulous holiday to South Africa and to Tuscany, a great trip to London and the Royal Opera House, caught up with lots of old friends, some great weekends away and enjoyed a trip to France. It was a very special year. It will be a challenge to better the year but it is my intention to at least try!
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